Leverage Opportunities + Speak the Medicaid Language: A Workbook for Title V

This workbook describes elements of the Medicaid program and guides users through the process of mapping the Medicaid system in their own state to improve the system of services for children and youth with special health care needs.

The system of financing and delivery of services for children and youth with special health care needs (CYSHCN) is complex and involves public and private payors, state agencies, community-based organizations, providers, and families and children. Nationally, less than 15% of families raising CYSHCN report that their child receives care in a well-functioning system. As the largest single payor for services for CYSHCN, Medicaid plays a crucial role in this system of services.

This workbook was created to increase Title V program staff knowledge about topics related to financing and the system of services for CYSHCN, especially Medicaid; increase Title V staff ability to describe their role in financing and the system of services; and facilitate the identification of financing-related strategic priorities for state Title V programs.

Workbook Sections

Workbook Frameworks

This workbook is designed to increase Title V capacity by providing education, guiding systems assessment, and increasing confidence to influence the financing system. Two frameworks informed the development of this workbook: the 10 Essential Public Health Services and the MCHB Blueprint for Change.

The MCHB Blueprint for Change is a national framework for a system of services for CYSHCN that describes a vision where CYSHCN enjoy a full life and thrive in their communities from childhood to adulthood. The Blueprint outlines four critical areas for a well-functioning system: Health Equity, Quality of Life & Well Being, Access to Services, and Financing of Services. This Workbook focuses primarily on the Financing domain, but financing is a crucial intersecting element of all the domains.

Workbook Objectives